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July 23, 2018 Patrick Nemechek, D.O.

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DL
DL

Dear Dr. Nemechek, I’m currently reading your book and I am very interested in starting the protocol for my son who is 3.5 years old (ASD, eczema issues (reduced by replacing milk with vegetable drinks but still present)…). I have some questions about inulin and FO ; that I try to get in France : – Inulin powder : the only one I can get is a mix 50% inulin from chicory and 50% fructo-oligosaccharide (FOS). Can I use it for the protocol or FOS could have bad / opposite effects ? – FO : I can get an EPAX-XO… Read more »

Mrs . Suji
Mrs . Suji

Hi,
My son diagnosed ADHD & ASD . Currently giving medicine for ADHD very low dosage .Addreall .5 MG per day . Can I do Nemecheck protocol . Or should I stop completely stop ADHD drug before starting the program.

Sara Thomas
Sara Thomas

Hi, Dr. Nemechek, My son is 26 months old. He has ASD-nonverbal. He was saying mama, baba and first letters of the alphabet. It has been two weeks since I started your protocol. Prior to that, my son was on amoxicillin for ear infection for ten days. Then he got another ear infection and they put him on Augmentin. He wasn’t taking it for us and he ended up getting two rocephin shots. We were also giving him Tylenol and motrin. We started your protocol a week after all this. I started with 1ml fish oil, 2.5ml olive oil after… Read more »

Daniela
Daniela

Hello, our son is a 3yo boy, ASD, nonverbal, with global developmental delay and chronic GI discomfort (since birth: bloating, frequents stools, perianal rash – we believe it’s SIBO). In the last year, he was on a vitamin/supplement protocol given by our DAN doctor. Beginning November we stopped giving him any vit /supp and we experienced “awakening” with only positive gains. As he was before on fish oil and olive oil we decided to start the Nemechek Protocol (NP) on November 26th as following: (1.) FO Ultimate Omega 1280mg – half of the capsule (2.) EVOO in cooked food (3.)… Read more »

Anonymous
Anonymous

Hi. 9 yr old autistic (moderate to severe) daughter 3/4 tsp inulin 2X’s a day. 6 NOW tabs DHA (split 3 each two times a day) and 1/2 tablespoon EVOO. All recommended bands. We have been increasing inulin gradually since Feb 2018 and intend to go at least to 1 tsp 2 times a day by Feb 2019. Question on Strep/possible PANDAS. I am certain she is a carrier of strep. She tested positive for swab and blood last year with no symptoms. But, she gets strep too and she currently is sick now. But strep is not showing on… Read more »

Mela Hadzic
Mela Hadzic

Dear Dr N, hello from Bosnia. I’m mother od 3.8 year old son. It’s a bit hyperactive and it has a slowdown of speech and understanding. Progress has been made in the last year where my great effort has been invested and he is now making sentences of 3 words. We started the protocol 15 days ago. Given his age, we currently have 1/8 of inulin, 1ml omega and olive oil in and on foods. My question is whether I’m wrong with a dose of omega. Should we start with a lower dose? I’m planning to increase inulin to 1/4… Read more »

Gayathri Parangipettai
Gayathri Parangipettai

My ASD kid (4yr) is been in protocol for 8months and recently we increased his fish oils intake from 3/4 to 1tsp and he has become so hyper, completely lost his focus and his concentration , lots of meltdown and tantrums. He is behaving completely different . Do i have to decrease the dosage?

Anonymous
Anonymous

Hi Dr. Nemechck, I belive my son is sensitive to salicylates. This is a new reallization. I know EVOO and inulin are high in salicylates. (Just learned evoo was high in it). I only have given evoo as I had plan to add the FO soon and later the inulin. He is 4 yr old and started with only cooking in evoo then increased to cooking with evoo plus 1 teaspoon in peanut butter. He started to be extra in behavior more spinning, stimming, more irritable and not listening. Although he seemed more aware and saying more things that were… Read more »

Becky
Becky

Dr. Nemechek, My son age 11 years and 6 months has slow motility bowel issues along with GERD. He is believed to be on the spectrum (highly functioning) he has anxiety disorder also. A little background his father (my son) was killed before he was born and his mother is an addict so he was removed at the age of 7 from her. It is believed he was born addicted and he also had a collapsed lung at birth. He lived in deplorable situations. Malnourished and exposed to drugs and just a bad environment physically and mentally. He is on… Read more »

Nish
Nish

Dr. Nemechek, I am curious to know if your protocol is helping children with Cerebral Palsy, and if the same protocol as given in your book would be applicable for them. Any insights would be greatly appreciated. Thanks, Nish

Nish
Nish

Thank you so much. We live in Dubai, hopefully will come see you for VNS some day. I have another question, do you have any Vegetarian DHA/ Omega 3 supplements that we can choose? I haven’t found an answer to this anywhere Dr. Nemechek. This step is stopping me from following the protocol since we are strict vegetarians. Pls guide us. Thank you.

Nish
Nish

Great, I really appreciate this, Thank you.

Elizabeth Harwood
Elizabeth Harwood

Hi Dr Nemchek My son has high levels of heavy metals in his system. I’ve never really dealt with detoxing him because I fear stirring up the metals and for them to be redistributed to worse places than they are now. He has been on the Nemchek protocol for three months to help with his slow processing speed and add and I always have at the back of my mind that I should detox him of heavy metals. Does doing Nemchek help with the detoxing process so that I don’t need a specific detoxing protocol? If not is there a… Read more »

Vasu
Vasu

Hello Dr. N

I Am very interested in taking up this protocol of yours as I m seeing amazing feedbacks and success stories. I have my 5 year old son who is mildly autistic and high functioning. Capable of speaking sentences though not fluently. His eye contact and auditory are not upto the mark hence mingling with peers doesnt happen. Can I just use the EVOO and nordic gummies with the prescribed dosage and substitute inulin with natural foods? Will this work. Awaiting your response. Thank you.

Annie Cheah
Annie Cheah

Hi Dr Nemechek, I am wondering whether you have trained any doctors in Malaysia or Singapore on your protocol? I need to see a doctor myself for Rifaximin. I also need to take my autistic son who has arthritis to consult a doctor on the protocol. He is 15 years old and after 2 months on the protocol, his verbal stimming still doesn’t reduce. He is on Inulin (1 tsp) twice a day, DHA(1500mg) +EPA(2100mg) and Extra Virgin Olive oil (1.5 tbsp). Do you think he needs Rifaximin? Thanks.

Mario
Mario

Hi Dr Nemecheck, i am a 64 years old male who was healthy with no problems whatsoever up until 20 months ago, i only had mild anxiety and a little arrhythmia . So 20 months ago on a trip abroad in a Latin country the pharmacist gave me diazepam and trifluoperazine (stelazine) wich i took for about one month. I started to have arrhythmia, heart palpitations, heavy sweating and then some involuntary eye, hands and feet movements . I thought it would all go away by itself but it stuck and some things became milder and some new symptoms appeared:… Read more »

Sofía Gómez
Sofía Gómez

Estimado Dr. Mi hijo de 4 años con autismo sin definir, deberá ser operado por sus testículos retráctiles, he aplazado la cirugía varias veces, tengo miedo de que esto le perjudique y aumente SIBO, es aconsejable esta cirugía? debería hacer la cirugía y luego el protocolo? O empiezo su tratamiento antes, el tiene casi siempre diarrea. Muchas gracias

Heidi Schnoor
Heidi Schnoor

Do you recommend same protocol for a child with apraxia diagnosis, but does not have autism. My son is 4 years old and non verbal, although has a lot of sounds and a few words.

Simon
Simon

Hi Dr.,
I know you recommend California EVOO.
I’m in London, UK. Is there any oil at all that has your approval in Europe?

Thanks

Bridget Dolan
Bridget Dolan

Hi Dr. Nemechek, I’ve read your book, watched a ton of your videos, and started my xifaxan treatment this morning. I’m a Navy veteran and have been through the ringer with the VA system. Anyhow, a doctor a neurologist at Northwell in New York City was the first one to say the words autonomic dysfunction to me. I had a tbi when I was a teenager followed by multiple concussions in the military. About 2 years ago I started experiencing neurological symptoms and was diagnosed with fibromyalgia and basically treated like I was crazy. After that ringer at the va… Read more »

Fleur
Fleur

Dr Nemechek,

Is NN fish oil ok for children with histamine intolerance?

Kat
Kat

Dr. Patrick, do you combine Neomycin (or Flagyl) and Rifaximin for SIBO? I can see that for methane dominant there is often a combination of two recommended.

Mounya khnaba
Mounya khnaba

Hi dr nemechek,
I read your book and i want start your protocole. But my 14 years old autistic child is anxious with insomnia and i will give them Ashwagandha for that.

They have any interference with the nemchek protocole.

We will start the protocole this monday.

Thank you so much

Anon UK
Anon UK

I’m pretty sure my daughter has PANDAS (not tested as it’s impossible to test for it in the UK, but illness always coincides with severe aggression and psychiatric-like symptoms which disappear about a week after the illness. I know for sure she had strep at age 2 and definitely had a big behaviour regression right after that, i think that’s when the PANDAS took hold. SHe is now 8. I tried giving inulin and after just 3 days, she had the worst outbreak of aggression and self-injury. I suddenly worry that the inulin is feeding the strep. Do you ever… Read more »

Annie
Annie

Hi Dr Nemechek, I stumbled across your protocol in your Youtube channel and I was convinced ever since that it will cure my autistic son. I have read your book and absolutely love it. My 15 year old boy is hyperactive, verbal stim a lot and has developmental delay. He was put on GF/CF diet since 5 and along the way he was on DAN protocol, SCD/GAPS diet for 1.5 years. He had his first arthritis attack at the age of 10. After 1 year of treatment using Voltaren, Prednisolone( for 2 months only) and Methotrexate, he recovered and was… Read more »

Lila
Lila

Hi Doctor, we are in protocol for 3 and half weeks. First 5 days of protocol I gave my kid only oils , that time we had more awareness and good eye contact, then I introduced 1/8 tsp inulin. After that we dont see much gains, only she is trying to say Happy Birthday to you. other than that we dont have any communication, no pointing. Also we see more stemming. Do you think I need up inulin and see what happens. Because when I was giving oils only we had more awareness an more eye contact, and responding to… Read more »

Claudia
Claudia

My my son is 11 and has confirmed SIBO with positive breath test- hydrogen and methane 3 years ago. Have done several courses of Rifaximin/neomycin over years but did not know of your protocol until recently and starting ASAP. He has diagnosis of PANDAS/autism/ LYME/CIRS but believe like you that all his symptoms stem from SIBO. I have a script for Rifaximin (2x550mg this time) but think we will try protocol first without? Add if needed? I have no access to a VNS device and have recently purchased a Vielight Neuro Gamma – I know it’s not the same but… Read more »

Claudia
Claudia

Thank you – yes that makes complete sense. I’m loving the simplicity of the protocol and wishing we had discovered it much earlier but Here’s to lots of progress, hoping his tics and other severe symptoms will decrease soon and discussing further with you.

Lila
Lila

Hi Doctor, we recently started protocol. like 3 and half weeks ago. Before protocol i was giving my kid Nordic Naturals Cod Liver oil. First five days of protocol , I gave her recommended Now fish oil and EVOO. We had good eye contact and good responding to her name with oils, after five days i added NOW inulin powder – 1/8 tsp dose . Now 3 and half weeks in we lost eye contact and no responding to her name, no communication (we didnt have it before too) stemming a lot, like lining up toys, no aggression though .… Read more »

Heather
Heather

Dr. Nemechek, what do you think of the new calamus oil that is beginning to be discussed for helping speech in nonverbal children? Would it interfere with the protocol? It is an intranasal oil. https://planetherbs.com/blogs/michaels-blogs/intranasal-calamus-oil-effective-treatment-for-down-syndrome-and-autism/

Heather
Heather

Fair enough!

Linda Kraus
Linda Kraus

Dr. Nemechek, First, I thank you for all you do! My 38 month hyperlexic possible ASD son and I started the protocol on 9/19/2018. Sons current dose: 1/8 tsp of Now inulin 1 ml of NN ProOmega FO Cooking with evoo, trying to eliminate bad oils from diet but some of his foods still have it. My current dose (29 weeks pregnant): 1tsp Now inulin 5ml of NN ProOmega 2 tbsp California Ranch Evoo and cooking with Evoo. * Taking Baby and me 2 Prenatal vitamins now as I realized one a day prenatals are terrible and have regular folic… Read more »

Thalia
Thalia

Hi Dr. Nemechek, I am almost done reading your book and have some questions about my 3.5 year old son. Inulin – The label on the Now Inulin prebiotic says “for adults only” is this the right one or is there one specifically for children? Olive oil – Your protocol says to just cook with it at this age but he has been taking 1tsp daily. Is that OK? Fish oil – he has been taking the Nordic Naturals for a year now but higher amounts than you recommend in your book. We lowered the dose now to match your… Read more »

Amanda
Amanda

My son had his colon removed at 2 weeks old due to NEC. He’s 15 months now.

Due to short gut, he has chronic diarrhea and when he was on safflower oil previously I discontinued because the diarrhea got uncontrollable. We used it in his bottles for extra calories when he was failure to thrive. Is this protocol contraindicated for him?

He also has CP (unable to hold up his head independently, sit, roll, etc), epilepsy and a visual impairment so I am definitely curious about this protocol.

Thank you!!

AMANDA GOSS
AMANDA GOSS

Dr. Nemchek,

Thank you! Is this protocol recommended in place of current gut meds? My son is on metronidazole the 1-7, neomycin 8-15 and nyastatin the 16-21 of every month to contain his bacteria. Otherwise we have found ourselves back in the ER numerous times.

His overgrowth seems quite determined.

Best,

Amanda

Cathriona Barrett
Cathriona Barrett

Hi Dr Nemechek, my son who is 4yrs 9 months has been on your protocol since June. He takes 2.5mls Nordic Naturals childrens DHA (which he was taking for a year prior to the protocol without issue), 1/8th tsp Inulin, and Evoo (high quality Greek) 2.5mls plus used in cooking. We saw a definite awakening at 1/8th tsp of Inulin so although the dose was minimal I stopped because the awakening obvious. We saw increase stimming and sensory seeking but gains in awareness and eye contact and began playing with a football which he had never done before. He started… Read more »

Cathriona Barrett
Cathriona Barrett

Thanks for the advice Dr Nemechek, it’s much appreciated.

Debbie
Debbie

How do you get 4-7 year olds to take the olive oil?

maayan
maayan

thats way you become a dr. 🙂

Anita hosie
Anita hosie

Hi Dr Nemecheck,
Love your work!…im a 49 year old female, have autonomic dysfunction, Gut issues, brain inflammation….post chickenpox infection with secondary staph and encephylitis….20 years on I am only able to eat 6 foods due to salicylats and amine i tollerance and SIBO….keen to begin Rifaxamin and the oil therapies…however fish oil and olive are both extremely high in amines and salicylates….any suggestions…would cannola oil work to some degree?? I eat lots of flax seeds, pumkin seeds and organic eggs…and 2 or 3 vegies…thats about it…perhaps after Rifaxamin that may change???
Kindest regards,
Anita

Saranya
Saranya

Hello Dr. Nemechek,
Thanks for helping lot of kids. My son is 4 years old and he is on the protocol for the past 4 months. He is on 1/2 tsp inulin and 1 Tbsp olive oil. I tried lot of fish oil brands for my son and it didn’t work. He refused to eat the food. Recently, I purchased Omega 3 innovations pure fish oil unflavored one. Some of them say it is not on the brand that the protocol suggested. What is your suggestions on that?

Iris
Iris

Hi Dr. Nemechek, My 4 yo son is starting rifaximin. Does he take fish oil while on the rifaximin?
thanks,
Iris

Iris Rubin
Iris Rubin

thank you.
He also takes grapefruit seed extract for PANDAS. Is that ok to continue with the rifaximin?
With gratitude,
Iris

Darcy
Darcy

Hi Dr. Nemechek, I’m very excited & hopeful to use your protocol on my 2 year old son, he’s about 28 lbs. I purchased Microingredients organic inulin powder made from Jerusalem artichoke & Barlean’s kids liquid fish oil containing 360 EPA/DHA per teaspoon. Today is day 2 of giving him 1 teaspoon inulin & about 9 mL of the fish oil spread into 2 of his 3 meals per day. I’m just wondering if you approve of these brand of supplements &/or if that is too much for his size? I haven’t seen any differences yet, will he possibly get… Read more »

Anonymous
Anonymous

Dr N, I sincerely appreciate the opportunity you have given parents and children by sharing your protocol. At the age of 3.3 years, my son was diagnosed with ASD as mild.He is 4.9 years old now and has made lot of gains in terms of communication.He is verbal and communicates well with us . The major concern we are working now is Emotions.He is able to understand his emotions, but not others.For example, he is unable to understand tat if he pushes a kid, the kid will feel sad.We tell lot of social stories in which he identifies the emotions,… Read more »

Anonymous
Anonymous

I am interested in starting the protocol for my son who is 7 years old and does not have autism but I am fairly sure he has ADHD and possible bipolar. I hate to diagnose but a mom knows her son. He always has struggled with lots of behavioral/aggressive issues and we struggle every day. Does this protocol also benefit ADHD and/or biploar? What I am scared of is this “awakening” period that is spoken of because my son has no problems with Autism and is fully awake! He can be very aggressive and very emotional most every day but… Read more »

Brian Dey
Brian Dey

I have a problem with strep, I might be a strep carrier. I am on antibiotics now. How long after the antibiotics should I wait to start your protocol ? Should I start taking inulin in the short time?

Brian Dey
Brian Dey

Can taking DHA at night cause you not to sleep?

Anonymous
Anonymous

Dr Nemecheck , I have read your book and heard a lot of good things about your protocol. It is very fasciating and I like the simplicity of this protocol. I have a 5 year old on spectrum. We recently took him to Panama ( almost a month ago). I have spoken to few people who have also done the protocol along with stem cells. Their suggestions are quite diverse. Some have suggested to hold off starting protocol for 4 months after the stem cell treatment . The idea is that the awakening period might harm the stem cell .… Read more »

Tasha McKinney
Tasha McKinney

Hello, I have just found your protocol and I am very happy. I have two sons, ages 4 and 6. I already give them Nordic Naturals Fish Oil (5ml) daily. Can you please tell me the amounts for the inulin and the DHA? They also can not yet swallow pills. What is your recommended alternative for your other suggested products?

Amino Amir
Amino Amir

Hi . I am a mother of 6 year old son on protocol since one month .i can’t get now inulin using inulin pure but 10 percent FOS in it inulin by healtharena uk brand
Can I use it in this protocol
What is FOS ?

Imran Haider
Imran Haider

Dear Dr. Nemechek, thank you for sharing your findings with the distressed parents the world over. I am in Pakistan, and my 13 years old son is diagnosed with mild autism (PDD-NOS). We are going to try NP for him. But I cannot find California’s EVOO. Importers are giving time ranges in months for that. Can you please suggest if there are alternates to the California’s EVOO? Thank you and God bless.

Ana
Ana

Dear Dr. Nemechek, I have been diagnosed with celiac disease. Is there a brand of inulin that you recommend that is certified gluten free? Unfortunately, the NOW brand is “Produced in a GMP facility that processes other ingredients containing these allergens.” (wheat). Thanks for your help in advance, Ana.

Lori Gier
Lori Gier

Are you coming to Texas anytime soon? Like Houston? We are doing great with the protocol so far but would love to purchase your VNS without the traveling. Will you ever sell and ship?

Mrs Samina Noor
Mrs Samina Noor

Hi Dr Nemechek. Are we allowed to eat chicken, meat and eggs while on protocol.as the suppliers of these foods say that they use products to feed their chicken which has got corns too. And animals are grass fed.please advice ..my 2 children are on Protocol since 6 wks but no gains yet.using recommended brand and dosages.thanx

Tammy Mouser
Tammy Mouser

I am sorry, I thought it was too much as well but the admin in the FB group encouraged me to do so.

I am a single mom and already pay all of her expenses out of pocket and just bought hearing aids for her. We honestly live at poverty level bc of all her health issues. Thankfully she is on scholarship for her ballet. I keep telling people in the group that I can’t afford to see you.

I apologize for sharing too much, I just didn’t know how else to do so.

Anonymous
Anonymous

Dear Dr.Nemecheck: I’ve read your book twice and love the simplicity of your protocol. My son (Aspergers, 21) was diagnosed of severe Pyroluria 2 years ago. He had been on the nutrients and thatmanaged his anxiety somewhat. About 5 weeks ago, I started Nemecheck protocol and gradually increased doses to 6 caps FO, 2 Tbp EVOO and 2 tsp inulin. In the meantime, I stopped all his other supplements. However, he had extreme fatigue and became more sensitive to light and sound. He stayed up really late and slept more than 12 hours but still tired. I had to add… Read more »

Tammy Mouser
Tammy Mouser

Hello!! We have attempted to be at this protocol a year after Kelsey Emuss shared a similar journeys between our daughters. We started last June 2017, but my then 13 year old was still on medication and prescribed iron and vit. C. She had been ill since 10 years old. Children’s doctors just filled her with medications and I eventually took her to a holistic doctor to look at the big picture. We made headway but were left with tons of side effects from the illnness like hair loss, eczema out of control, fatigue, and acne everywhere which is devastating… Read more »

Jolene Samuel
Jolene Samuel

Dr N, I sincerely appreciate the opportunity you have given parents and children by sharing your protocol. My 6 y.o. ASD, non verbal son, seems to have a negative reaction to the NN fish oil. Whenever I use it, he presents with heightened emotions and wets the bed. On inulin only and EVOO in cooking, he is dry at night (actually became dry at night once inulin started). Any suggestions re another omega 3 source? Should I try a different type of FO cod? Tuna? There seems to be a pattern related to fish oil use

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