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How I Reverse Autism in Children

How I Reverse Autism in Children
December 7, 2015 Patrick Nemechek, D.O.

Autism Blog

For anyone with small children with Autism, this article is my Christmas present to your child.

There is growing scientific evidence that an imbalance of intestinal bacteria called SIBO (Small Intestinal Bacterial Overgrowth) is responsible for triggering Autism.

Small numbers of bacteria live in the upper, small intestine with larger numbers of bacteria down in the colon. SIBO happens when colonic bacteria migrate up into the small intestine and cause symptoms.

SIBO symptoms include heartburn after particular foods such as tomatoes, spices, bell peppers, or lettuce. SIBO also causes IBS, anxiety, eczema, and it can trigger many autoimmune disorders or cause inflammatory pain in joints and muscles.

SIBO is being linked through a variety of studies to cause a chemical inflammatory state within the brain often referred to as metabolic inflammation. This inflammatory process is triggered by the priming (a state of permanent activation) of the primary white blood cell within the brain, microglia.

Primed microglia are being linked to a phenomena referred to as cumulative brain injury or CBI. Under normal healthy conditions, the human brain is designed to fully recovery from most physical, emotional and inflammatory injuries.  But once the microglia are primed, some residual damage is left behind after each of these injuries and is added to prior residual damage leading to CBI.

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This same microglial inflammatory state slows down synaptic pruning during childhood development and is responsible for most developmental delay as well.  The underlying neuroinflammation in children with Autism greatly contributes to their developmental delay, unresolved autonomic damage from head injuries that lead to ADD and ADHD, and frequent seizures.

And finally, SIBO bacteria also produce a chemical called propionic acid. In autistic children, propionic acid levels are high. In animal studies, high propionic acid leads to the development of antisocial behaviors, increased sensitivity to sound, light, and touch, as well as gait abnormalities.

By eliminating the propionic acid production from SIBO and reversing the microglial inflammatory state in the brain, I have successfully reversed the major features of Autism in many small children.

I use a prebiotic fiber called inulin to reverse and control SIBO, and high doses of omega-3 fatty acids to normalize microglial function and normalize the inflammatory state within the brain.  Cooking with extra virgin olive oil also helps reduce inflammatory from excessive omega-6 fatty acid (linoleic acid) exposure from vegetable oils.

Inulin is a natural fiber found in onions, garlic, artichokes, and chicory root. You can buy powdered inulin online. I prefer Fiber Choice gummies that can be found at local pharmacies and grocery stores. Remember, the first ingredient must be inulin. 2-4 inulin gummies a day often reverses SIBO propionic acid enough to allow a preschool age, non-verbal autistic child, to begin speaking within 4-6 weeks.

This is equal to ¼ to 1 teaspoon of powdered inulin daily. If the children do not like the gummies or they are not available, I recommend pure powdered inulin (without additives such as enzymes or probiotics).  Inulin is heat-tolerant and can be mixed or sprinkled over any form of liquid or food.  NOW Foods makes a reasonably priced pure organic inulin and is found at many online retailers.

My patients take 2 Nordic Omega-3 Fishies (made by Nordic Naturals), a dose of 600 mg of omega-3 fatty acids per day.  This equals about 600 mg of omega-3 (DHA + EPA).

If the Nordic Fishies are not available, it can be replaced with other forms of fish oil liquid or capsules.  I recommend buying a high-quality brand that has been verified by an outside agency as there is a very high level of fraud in the supplement industry.

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All families are asked to cook their foods in extra virgin olive oil (EVOO).  EVOO contains 70% oleic acid, and oleic acid reverses the underlying inflammation coming from excessive linoleic acid toxicity.  Linoleic acid is most commonly found in the unnatural vegetable oils added to the foods we purchased.  See my other post about omega-3/omega-6 rebalancing for more information.

Reversal of SIBO with inulin results in a drop of propionic acid and can result in a sudden improvement in function within a few weeks. But many children don’t fully return to normal because they still have an underlying developmental delay (some quite severe) as well as ADD, ADHD, chronic depression or anxiety/aggressive states.

These remaining conditions take longer but week by week things will slowly improve.  If there is no significant improvement within 2 months I generally increase the dosage of omega-3 fatty acids and even add vagus nerve stimulation if necessary.

Omega-3 fatty acids reduce neuroinflammation and have been associated with a significant reversal of delays and seizure activity. I have witnessed inulin fiber and high dose omega-3 put autism in near-complete remission in small children.

The brains of older kids have experienced prolonged SIBO and stress and take longer to show improvement, but I have seen significant progress in older kids as well but children older that 8 often require more effort to reverse Autism.

I escalate the dose of omega-3 fatty acids up to a total of 3,000 mg (total of EPA and DHA) depending on weight with the top end of 3,000 mg being for a 160 lbs. or heavier teenager.  Likewise, sometimes younger children need a higher dose if they don’t respond to the 600 mg dose after 2 months.

The inulin dose in older, larger children can safely go up to 2 teaspoons per day. Beyond that I haven’t seen any improve and it just seems to cause too much gas.

To gain better control of SIBO in older children I often treat with a 10-day course of Rifaximin (Xifaxan in U.S.).  Rifaximin is a non-absorbable antibiotic that is only used for other SIBO conditions (hepatic encephalopathy and IBS with diarrhea).

Follow-up use of inulin after Rifaximin is sometimes used if intestinal symptoms are still present.  If inulin doesn’t make any significant difference as follow-up therapy, I stop it.  I never add probiotics after reset with Rifaximin because they can easily make things worse even if they helped prior to the use of Rifaximin. (Read more about my thoughts on Probiotics.)

The brains of older kids have experienced prolonged SIBO and stress and take longer to show improvement, but I have seen significant progress in older kids as well.  I have some teenage non-verbal autistic boys (14 and 16 years of age) and they took about 4-5 months to begin speaking.

More recent is a remarkable case of a 23 year old non-verbal autistic child with frequent seizures.  Within 8 months her seizures had reduced from 5-7 per day to 2-3 per week and she can write her name and speak in both Spanish and English (dual language family).

For Autistic children, consistent anti-SIBO efforts and fish oil consumption will need to be daily and possible forever. Just remember, the benefits are life changing, inulin fiber, omega-3 fatty acids and olive oil are from natural sources, are commonly consumed by most of us every day, and are available without a prescription.

I am an internal medicine physician and my private office is located in the greater Phoenix, Arizona area. For more information on my work with Autism, SIBO, and the Autonomic Nervous System you may call my office at 623-208-4226 or go from my website www.autonomicmed.com

Happy holidays from Jean and Patrick Nemechek.

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Addendum March 8, 2017 –  In response to “Isn’t autism a genetic disorder?”

This is where the recent surge of “genes-associated with autism” is causing great confusion. There is no evidence these genes themselves cause any of the features of autism.

Furthermore, if autism is a genetically-derived disorder or disease (the semantical difference misses the point), why was it very uncommon prior to 1950 and why is it increasing in frequency? There is no evidence that we are rapidly developing more mutations within 2-3 generations.

Autism is an inflammatory condition (from SIBO, microglial priming, linoleic acid exposure, AGE exposure) combined with a toxic encephalopathy from SIBO (production of propionic acid).

The propionic acid makes the kids act a little drunk and when the gut is stabilized, they can improve a little or a lot from this within just a few week. What remains is the developmental issues and overlapping neurological damage from the brain’s inability to prune synapses correctly and fully repair brain injuries (bumps on the head, vaccines, surgery, emotional trauma).

The inflammatory component is driven mainly from excessive priming of microglia to a M1-phenotype, and induces varying degrees of developmental delay depending on the intensity and the time of increase (in utero vs 12 months for instance). The same inflammatory process also inhibits recovery from physical and emotional traumas and is being demonstrated in a variety of animal models.

So my approach is quite straightforward. Rebalance gut bacteria (this lowers propionic acid production and reduces inflammation) along with a reduction in inflammation with omega-3 fatty acids supplementation and the supplementation with oleic acid (main constituent of olive oil) to reduce additional inflammation from linoleic acid toxicity.

Addendum March 23, 2017 – Notes on Recovery

My Experience with Autism Recovery:

Uniformly all the kids under my care (50-60 to date) seem to be improving in significant ways.

In terms of speech, some younger kids start speaking within a few weeks while kids in the teens might take 4-6 months.  Our 23-year-old patient didn’t start speaking until after 8-9 months of treatment.

Importantly, even the most severe cases have a noticeable improvement in their awareness of heir surroundings within a week or 2.  I interpret this as a decline in the toxic effect of the propionic acids on their brains.  Parents report more eye contact, awareness or acknowledgement others have entered the room.  They also seem more tolerant of being touched or held, or are more willing to approach someone and be physically close to them.

After the first few weeks, recovery rates are highly variable, and I believe this is due to the degree of developmental delay underlying the toxic state.  If the inflammatory cytokine process has been going on since birth, there can be so much developmental delay as to be labeled mentally retarded.  But if the developmental delay is simply mild, kids may seem very functional quickly.

The important point to remember is that your child’s brain and an enormous capacity to continue the path of development once the inflammation is controlled.  Neuronal/synaptic pruning will re-initiate, and according to the developmental delay literature, they can catch-up about 2-3 months of development for every 1 calendar month.  In my estimation, it seems to advance this fast if not faster.

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The underlying wild card is what gene has been activated by the inflammation and what might it do to the neurological impairment of your child’s brain.  The inflammatory environment that prevents normal synaptic pruning and recovery from brain injury also triggers the litany of genes being found in autism.

Inflammatory cytokines abnormally produced by the mother are affecting the child’s nervous system within the womb, and then the imbalance of intestinal bacteria of the child as well as high omega-6 food sources continue to fuel the inflammatory process within the child after birth.

These inflammatory cytokines are the primary process through which the genes within the DNA that had been dormant for 1,000’s of years in the child’s ancestors are finally activated, begin altering how cells function, and contribute to the overall variety of neurological, behavioral characteristics that manifest in autism.

Here’s the potential for recovery in the autistic brain. A 23-year old non-verbal autistic female (Lennox-Gastaut Syndrome), was having 6-8 seizures per day and had never held her parents gaze for her entire life.  She did not like to be held, could not color or write, and sat curled up in a chair most of the day rocking.

Within 2 months’ of starting our protocol (rifaximin, high dose omega-3 fatty acids, and mother cooking with California olive oil), her seizures had dropped to 1-2 a day, she would sit upright in a chair and she slept through the night.

At month 4 she started looking her parents in the eyes and holding their gaze, and was more able to be touched and hugged.

At her month 6 office visit, she started smile at me, her seizures had reduced to 1-2 per week, she could now write her name (although she had never been shown previously) and could draw objects that were recognizable.

At 8 months, she began speaking rudimentary Spanish and English (dual language household) but emotionally is behaving as if she is 3 years old.

At 18 months, she speaks very clearly in full sentences, her seizures have declined to 1-2 per month (despite discontinuation of 2 seizure medications), and her emotional maturity has risen to about that of a 4-5-year-old.

But don’t despair. No matter how badly the developmental delay has slowed brain maturation, the potential for an unbelievable recovery is present.  We are beginning to understand that once human genes are turned on by inflammation, they can ultimately be shut back off again once the inflammatory environment within the body is significantly reduced.

Do your best to be patient and give this approach a chance.  Because the path to recovery over all things medical is 3 steps forward, and 1-2 back, compare today’s behavior to last month’s, not yesterday’s. The neurons within the human brain, like your hair, can only grow and change only so fast.

Every month, your child’s brain has the ability to “catch-up” 2-3 months in development.  That means every calendar year, they may catch-up 2-3 years.  I believe once the inflammation is suppressed, all that is required for recovery is a good solid inflammation suppressing regimen and patience.

© Copyright 2015-2017. Dr. Patrick M. and Jean R. Nemechek. All rights reserved.

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Recovery Search
Recovery Search

Hello Doctor, my son is 2.3 year old, I think he regressed from 18 months i still remember Dr told me my son is very social and on the same day they gave multiple vaccinations on the same. After that he started slowly regressing but we finally observed it on his birthday. I accidentally came across your book and we started following name check protocol nearly 4 weeks ago. we started inulin 1/4 table spoon two times a day, started cooking with Olive Oil (COOC certified)and Nordic Naturals Children DHA 530 mg -1/2 tbsn ( 170mg EPA+255mg DHA) . Giving… Read more »

Tahmeen
Tahmeen

Hi, I need help my son is non-verbal and he keeps flapping his hands also sometimes he becomes very aggressive. Since I Stay in India would be difficult to come please suggested the correct dose for him he is 7 years old.

Vyara Ivanova
Vyara Ivanova

Hello Dr Nemechek! First I would like to say a big thank you for what you do for our kids! I have a 7 year old boy who was diagnosed with Autism Level 2. He’s verbal, social and aware of his surroundings. We started NP in end of January with 1/8tsp of Inulin, 2.5ml of NN ultimate Omega fish oil and 1/2tbsp of olive oil, all recommended brands. I’m not sure if he had awakening due to him being more high functioning. He started having a tic with his mouth. I recently changed his dose of Inulin to 1/4tsp. The… Read more »

Vyara Ivanova
Vyara Ivanova

Thanks a lot!

fee
fee

Is Natures Bounty brand ok ? We don’t have fibres choice. My son takes broccoli sprout extract and its amazing so keen to read your book and try.

NSidd
NSidd

Hello:
My wife shared your article with me. Can you please provide input on the right dosage of inulin and fish oil for a 40 pound, 6 year old non-verbal boy. We would appreciate your input. Thank you!

Chinedum
Chinedum

Dear Dr. Nemechek thank you for all you do.
I have an eight year old with ASD, he’s verbal but can’t engage in conversation, he mainly says what he wants. He is intolerant to food high in phenol, citric acid, sugar, struggles to digest protein and high carb food, as a result, he can hardly eat any veggies or he will flare up his stimming behaviour. I know he has yeast overgrowth. He doesn’t do well with fish products, we give him DHA from seaweed
I want ask if you think Inulin will be beneficial for him.
Thank you

MImi
MImi

Hi, I have 4 (1/2) years old daughter with commutation delay and autism /ADHD symptoms. I give her Nordic Naturals Complete Omega Oil which contains GLA for almost a year ( recently I increases to 2 tea spoons) which helped her speech and language but she still talks like 2 (1/2) or 3 years old. I also give her probiotics and zinc and iron and vitamin c. Recently her sensory issues has increased ( she starts to eat soil, play dough , chalk) and her eye contact becomes worse and she sings alot in therapy classes that reduces her attentions… Read more »

Melinda Starkey
Melinda Starkey

Do you recommend continuing with vaccines for a child with autism? I have removed all gluten, casein, dairy and soy. Increased omega 3 and started cooking with extra virgin olive oil and lots of onions and garlic (inluin). My son now speaks sentences, no longer has meltdowns or stimming. He seems like a perfectly normal 3 year old. I’m so scared of losing all of our progress and his shots are coming up. Do you think getting his shots will have any affect?

Rachel Turner
Rachel Turner

Hi, I have a 3 year old son with level 2 autism. I am in Australia so things may be different to over in America. My son is on ‘epilim’ medication for absent seizures and his paediatrician prescribed him ‘lovan’ medication for his behaviour, he attends various therapy sessions, has one on one support at his childcare centre but nothing seems to be helping. I was told by someone to take a look at the nemecheck protocol and I’m amazed at what you have done! I would love to try this out for my son. My questions being, what exactly… Read more »

Sanja Lazarevic
Sanja Lazarevic

Is it ok to use Inulin from NOW producer having in mind that on package is written that is only for adults?

Amanda Zimudzi
Amanda Zimudzi

Hi Doctor. Please give me a link on how i can book skype interview thanks

gabrielle
gabrielle

Dear Dr Nemecheck, I did 2 different OAT tests 3 months appart. The first one was high in HPHPA and stool was 4+ clostridia (although I know that it doesn’t represent what’s in the small intestine). 3 months later the HPHPA was lower but still in the high range (maybe 86th percentile…). Do you believe it is still high even tough in the range.. .I guess I want to know if propionic acid has a different effect on a autistic child vs a neuro-typical child. The neuro=typical child doesn’t have primed microglia as you mention in your book so I… Read more »

Zohaib
Zohaib

Hi,
Do you think children diagnosed with Phelan Mcdermid syndrome which includes terminal deletion on the long arm of chromosome 22 thus creating a ring 22 chromosome can benefit from your protocol? My son now 4 had been diagnosed as such and he has no speech with severe stomach pain issues. As it involves a significant deletion on chromosome I wonder what are his chances f your protocol is tried on him. Would appreciate your reply.

Itsik Zamir
Itsik Zamir

Hello Dr Nemechek,
My 6 years old sun had an organic acids test. One of the results was that the level of arabinose in his sample was 423 (According to the laboratory, it should be less than 50).
According to the laboratory, the arabinose is indicative for a yeast/fungal overgrowth of the gastrointestinal tract. There is a research that claims that arabinose is frequently elevated in autism.
My question is: Is the arabinose connected with the propionic acid ? Could a decrease in the propionic acid (due to inulin consumption) could lower the levels of the arabinose ?
Thanks.

Itsik Zamir
Itsik Zamir

Thank you very much.

Itsik Zamir
Itsik Zamir

A question regarding the timing the inulin consumption: Inulin belongs to the group of soluble dietary fibers. As I understand, Inulin has two effects, among other things: 1. Contributes to the good bacteria population – When the reaches the intestines, it is fermented by the good bacteria in the intestine and cultivates its population (bifidus and lactobacillus bacteria). The fermentation products probably affect the absorption of calcium and magnesium and other minerals. 2. Cleaning cholesterol and fats from the body – Inulin fibers are converted into a gel that binds to food, sugars, cholesterol and fats, and carries them throughout… Read more »

Itsik Zamir
Itsik Zamir

Thanks for the reply.

Julia
Julia

Dear Dr. Nemechek,

I have an autistic son and I am going to start your protocol. I know you recommend to stop all other supplements, but I would like to know your opinion on Carnosine. He’s been on it for last three years (Carnosine star – Starlife) and I feel it helps calm him down when he has the worst moments. Can Carnosine negatively impact the protocol and would you suggest to stop it too or can I continue supplementing it?

Thank you,

Jana H.
Jana H.

Dear Dr. Nemechek,

we have a 6 years old autistic son and we have recently started your protocol. Our son has probably a problem with fat digestion, we can see a plenty of fat or bile around his stool in the toilet (it had been there since long before we started your protocol). Would you recommend to add any other supplement apart from inulin, Omega-3 and EVOO to help with fat digestion or should it get better with the Protocol itself?

Many thanks.

Michaela
Michaela

Dear Dr. Nemechek,

I have a 7-years old autistic son who has been on your protocol for some time now. I have stopped giving him all other supplements, however, from your experience, can you please suggest – when he will be ill, what fever is still ok and what fever is too high and I should give him medicaments to reduce it?

Thank you in advance,

Kind regards,
Michaela

Daniel Cano
Daniel Cano

Dear Dr Nemechek, first of all thank you for all your incredible work and success, secondly we have an 18 year old moderate autistic teenager (he has very limited communication skills, social interaction and self help abilities) , lately he has had very aggressive behavior spells (biting), that last for a very short time and after they are gone is like nothing happened,
I have two questions is your protocol good for a teen ager that age of that age? And also do you think it will help to reduce or eliminate this aggressive spells?

Michaela K.
Michaela K.

Dear Dr. Nemechek,

I have a 7 year old autistic son Tomasek who has a SNIP in MTHRF (C677t). Our practitioner recommends lifetime supplementing of vitamins B6, B12 and folic acid. I have started treating Tomasek with your protocal recently – would you recommend to stop supplementing B6, B12 and folic acid now or would you recommend to continue with it?

Thank you in advance,
Kind regards,
Michaela K.

VCT
VCT

Hi Doctor, Thanks it good to know so many kids came out of ASD with your protocol. My son is 4 years 6 month old, and he is diagnosed for ASD and language. He has been on multiple therapy (ABA), OT and Speech, and medically he was on mix of biomed and allopathy protocol for less than a year (as suggested/prescribed by pediatrician), and currently in Nemechek protocol for more than 3 months. We started giving 1/8th teaspoon of inulin, and 1 ml of fish oil and olive oil for cooking (Now brand inulin, Nordic naturals ultimate omega fish oil… Read more »

Flo boneham
Flo boneham

Is there an awakening even if the child isn’t autistic? My 6 year old has social and communication development delays. Will she have high proprionin acid?

Jacco
Jacco

Hello Dr. Nemecheck, Our son (12 years) has ADD and is sometimes over-stimulated. He also has no friends and he is only interested in football and music. He hardly does any cycling and carrying out assignments. For the rest, he is a nice guy who can talk well, knows what humor is and usually goes to school. After buying your book, we have started since October 24, 2018 per day 1×1 / 8 tsp Insulin, 1×3/4 tbsp Ultimate Omega fish oil and 1x 1 tbsp EVOO. First of all, we are grateful to you, that you are committed to the… Read more »

Allie
Allie

Hi Dr N, what natural therapies are NP friendly to boost immune system during the flu season? My 4 year doesnt get the flu vaccine. I normally give vit C. Is that ok? What about elderberry etc. Thanks

Trish Nelson
Trish Nelson

Hi there!!! First I want to thank you from the bottom of my heart for sharing your research and expertise with us all. You have helped so many children and families! My question pertains to the inulin dose possibly not being enough to keep relapses of SIBO from occurring . We had gains initially with 1/4 tsp but with illnesses (colds etc) my kiddo (6 year old) With Down syndrome has relapses where constipation returns and some gains disappear for weeks etc. I read and re-read the chapter on relapse. Just thought I may need increase to 1tsp and that… Read more »

Megan
Megan

Hello, we’re doing very well on the protocol thank you. I am currently suspicious that he might have picked up worms a friend’s dog. Lots of hands down the back of his pants and waking up in the middle of the night. Do you recommend anything to treat worms? In Australia, you can buy combantrum over the counter.

Amanda curts
Amanda curts

my son has been on protocol 14 months. last 3 months he has had severe constipation. he is on 2 tsp inulin twice a day 2 now dha caps and 20 to 25 ‘
ml and 2 tsp magnesium calm what should I do he’s 12

Garry
Garry

hi Dr. Nemecheck; my son who is 5.6 yo has rare gene mutation in STXBP1 gene due to which he has severe speech delay and he gets difficulty in combing sounds to make a word… he has Intentional Tremors in his hands ; in addition to all this his balance coordination is not quite great…and has adhd traits too… I started nemecheck prtocol on 16th july 2018 would like to know m not able to see any awareness in him just seeing some behaviours like pulling hair, grabbing n hitting kids… he is currently on 1/2tsp inulin in morning and… Read more »

Stacy Miller
Stacy Miller

Hi, I have had my 4.9 yr old son on the protocol since July 17th. He has made improvements from the beginning day 1 including potty training immediately, formed stools, increased eye contact, increased social awareness/interactions, very lovey/kissing family members. We had an mild awakening including being more emotional, being defiant, running away from us laughing when he has never eloped from us ever. I increased inulin every 7days and we are currently up to 1tsp. Within about 1hr after his daily dose of your protocol he ramps up with the running from us/defiant behavior. He is non verbal and… Read more »

Indra
Indra

We are on the protocol for over a year for our son, 7 year., was diagnosed severe ASD at 3 years of age. He has had amazing gains on the protocol for which we are very thankful. He is currently on 1tsp inulin, 2 caps NOW DHA and. 1 to 2 tbs of EVOO. Regarding spech, he had words or even full sentences here and there (only after starting the protocol) followed by long period of no words. I have seen a speech spurt when we increased fish oil which does stay only for few days and he goes back… Read more »

Paula
Paula

Hello Dr Nemcheck. I read your book and just bought the NOW inulin. To my surprise it is labeled as “for adults only”. Is there a different NOW inulin that I should be aware of? My intention is to use it on a 2 and a 5 year old. Thanks

Omobee
Omobee

Hello Dr N. Thanks for all you do. My 4 year old has been on the protocol since July 2017. He has definitely improved but still has attention and hyperactivity issues. His speech is way better and is attempting to carry on conversation. I have 2 questions 1. Should I switch to rifaximin for him? Considering he started the protocol before he turned 3 and is now 4 years old. He is on 1/2 tsp Inulin morning and night, 2 NN ultimate omega capsules and 10mls EVOO. 2. I have a 4 month old and I’ve started her on NN… Read more »

RAY
RAY

Dear Dr. Nemechek,

My son is 4.5 year old and we have been using this protocol since three months. the dose is Organic inulin 1/4 spoon once a day with food,1.5 ml of Nordic fish oil 1560 mg ( Not the ultimate one)one time, and 1.5 ml of California Olive oil 2 times in food. His vocal stimming and jumping and hyperactive has become more. Is there anything we need to adjust his doses. He is also on GFCF diet also. Please advise.

As MOM
As MOM

Hi Dr. Nemechek!! I have alopecia Areata. I have SIBO and my doctor prescribed me 7 days off 500 mg Rifaxamin (even though I’ve tried to get 10 days he wouldn’t) since then I’ve been doing the Nemechek protocol. It has been about a month. My alopecia areata hasn’t improved (I’m guessing) because I’m stressed out about my ASD son. But my anxiety has gone down drastically, my bowels are actually normal (haven’t been for ages). My question to you is do you think I should go with oral prednisone to stop the alopecia areata. Or should I power through… Read more »

Deb Barnett
Deb Barnett

My 12 year old son has non verbal autism. We’ve been on the protocol since July 2017 and ramped up very slowly. We’ve been on full dose since March 2018 —1 tsp inulin am and pm, 3 caps a day of now 500 fish oil, 15 mls of olive oil, and we have significantly cut our omega 6s. We’ve seen steady receptive gains, improved mood, and formed stool. All great stuff. But only see minor improvements in speech. I was able to get an rx for rifaximin from our integrative pediatrician but I’m not sure if this is our next… Read more »

Giselle
Giselle

Hi Dr. Nemechek,

Does milk and milk products that are fortified with vitamins and minerals are contraindicated then?
Thank you for helping our kids! Know that you are a blessing to thousands of children! God bless you and your family!

Heather
Heather

Dr. Nemechek, We started the protocol on July 1. From then until the end of July, I saw nothing but slow and steady gains for my six-year-old son with nonverbal autism. We had an issue, briefly, about a week and a half in: I switched from NN to NOW fish oil and we saw incredible aggressiveness and regression. We figured out he was having a reaction to the soy in the NOW. We switched back to NN and the slow, steady gains returned. I’m now trying to figure out what is going on because the regression and aggressiveness are back,… Read more »

Gabrielle Mathieu
Gabrielle Mathieu

Dear Dr. Nemecheck, I’m glad I found your book. I’m halfway through it. I’m in Canada (quebec), sorry for the English. We mainly have “traditional” doctors here and naturopaths who are not allowed to prescribe medication. I was brushed away by a doctor when I told them about dysbiosis in my child, since he had not “physical symptoms”. My 20 months old is most probably autistic (I’m a speech language pathologist and I soon recognized the regression around 15 months old…) and is currently being assessed. I did an organic acid test and all the SIBO markers are there (ELEVATED… Read more »

Thea Peluso
Thea Peluso

Hello Dr. Nemechek – Thank you for addressing the root cause of the symptoms so many of us have been chasing for years! My son is 23YO and diagnosed with PDD-NOS before age 3, later diagnosed as autism. I have a few questions to follow up on what I learned from your “How-To Guide” for those with Autism and Developmental Disorders. + Have you found that ANS recovery improves dopamine function too? + Did any seem to need DMG or TMG or was the reduction of inflammation from the protocol enough? + If patients are already taking a multi-vitamin/mineral and… Read more »

Anonymous
Anonymous

Hello Doc Nemechek,

Can the inulin level be maintained at 1/4 to 1/2 tsp (or lower) to prevent the worst of the awakening symptoms while continuing to increase the omega 3 dose? The tantrums we are seeing are going to end up causing our child who is mainstreamed but quirky to be placed in special education if we don’t get control of his emotional meltdowns. We want him to heal but the awakening is causing personality changes that are breaking our hearts and devastating our whole family.

Thank you…

Stephanie
Stephanie

Dear Dr. Nemechek, I have 2 children following your protocol almost 2 and 7 year’s old for 3.5 months, never missing a dose. I’ve read your book many times and watch all of the you tube videos. My oldest is doing well, and has slow/steady gains. She has high functioning ASD, OCD, and SPD. My 23 month old is non-verbal, moderate-severe ASD, and SPD. He’s gone through the awakening with an increase motor/verbal stimming, hyper activity, insomnia etc. However, he really doesn’t seem to be very aware of us, he’s still very much in his own world. Every now and… Read more »

C.Marouane
C.Marouane

Dear Dr. Nemechek,
My 2y and half boy is diagnosed with PDD-NOS he started regressing after his MMR shot at the age of 18 moths,
he always has loose stools since, I don’t remember him having a normal stool ever.
He has been on your protocol for two weeks now, my question is : should we expect the stool to improve with the protocole or is there something else that should be checked ? We give him 0,75 tsp inulin, 2ml of NN Ultimate Omega-3 and all his food is prepared with EVOO.
Thank you so much for your time and effort.

Anonymous
Anonymous

Hi: We started the protocol on July 5th and I’ve noticed in the last few days my 4 year old is blinking a lot and poking himself in his eye. He also has been banging his head all behaviors I haven’t seen before. He’s only on 1/8 teaspoon inulin and 2.5 ml of the ulimate fish oil ( I cook w the recommended EVOO). Should I stop or change something? I really don’t want him to hurt his eyes . He is vitamin d deficient so I just started him this am on vitamin d and calcium in case that… Read more »

Mariale B
Mariale B

Dear Dr. Nemechek,
We started the protocol 3 weeks ago for my 3.10 year old ASD son.We bought your book; however, I am still confused with dosage. He is currently on 1 ml fish oil (NN), 1/8 NOW inulin (once a day) and plenty of EVOO (Recommended brand). Should I give him 1/8 inulin twice a day or 1/4 once a day? Can I increase FO to 2ml?

Thank you!

Allison
Allison

My 4 and half year old daughter has been on your protocol for the last 10 weeks with no improvement. The last 4 weeks I increased her omega3 to 2470( 1200 (1410 dha ,per day./1060 EPA) She is on inulin powder (NOW) 1TSP x the last 8 weeks . I HAVE to give her Mg for constipation every other day. What else can I do to see gains? I ve read your book cove to cover. I’m searching for answers. Thanks!

Andrea
Andrea

Dear Dr. Nemechek,

I am about to start my 8 year-old son on your protocol. I just have one question. My son had the overgrowth of Bifidobacterium , undergrowth of lactobacillus that showed in his past stool test. My understanding is that even good bacteria like bifidobacterium can overgrow and cause problems. My worry is that inulin would further feed bifidobacterium. My son has already a lot of stimming behaviour. I appreciate your time and effort to help these kids. Many thanks.

cesar castillo
cesar castillo

dr.nemechek good afternoon, I’m Peruvian, I have a 14-year-old son with severe autism, I remember that my son since he was born was not well … he did not have the strength to breastfeed, he did a very quiet first year he did not cry much, he delayed in walking up to a year and a half, at 2 years he had nocturnal cries of crying that ended after throwing gas stomach, now speaks about 40 basic words … has tdah, for 6 months I give him cannabis-cbd and mms (chlorite Sodium without activating-m .. Gregor’s pleasures) but without much… Read more »

Annie
Annie

Hi Dr Nemechek, my son has ADHD (4 years old) and his self talk is increasing recently. He knows a lot of words but he could not comprehend and not able to apply in daily conversation. From my study, EVOO can be consumed as much as possible, but the fish oil should be capped at 1ml per day (Total Omega 3-s 3400mg). How about the inulin powder? I bought inulin powder (brand – NOW) made from Blue Agave. I started to feed my son with very small amount i think less than 1/8 teaspoon as I worry my son will… Read more »

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